Batten disease is the main life-limiting neuro-degenerative disease affecting children in the UK. Children are born apparently healthy before developing seizures, loss of vision and the ability to walk, talk and eat. Research is ongoing but there are no treatments and currently NO CURE.
We are the only UK charity set up by parents which directly supports families affected by Batten disease and the professionals who work with them. We also raise awareness to enable us to fund research into potential treatments and ultimately a cure.