EDS UK was set up in 1987 to support, advise and inform those living with Ehlers-Danlos Syndrome and help them live a full, active and positive life. We are the only UK based charity that exclusively represents and supports people with any of the types of EDS. This is regardless of their position on the EDS spectrum.
We run regular events and conferences to bring our community together and produce literature and merchandise to increase understanding in managing the condition.
EDS UK strive to educate the medical community promoting joined up medical care, treatment, management and improve accurate diagnosis. We fund vital research to further understand EDS, finding the gene responsible and working towards a cure.