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MPS (Society for Mucopolysaccharide Diseases)

The MPS Society supports anyone affected by MPS and related storage diseases across the UK with specialist advice and information. We also carry out leading research so that new treatments and therapies are offered making life with a rare disease as pain free and easy as possible. MPS and related diseases affects one baby every eight days and are genetic, metabolic diseases which cause progressive physical disability and in many cases severe neurological deterioration. Although there is treatment for some of the diseases, there is no cure and many of those affected will die in childhood. We offer quality support for the whole family through our helpline, tailored advice, access to practical tools and we offer personalised emotional support if a child dies. Our vision is to transform the lives of those living with these rare diseases and to make an unbearable time more bearable.

Call: 0845 389 9901

MPS (Society for Mucopolysaccharide Diseases)

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