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Neurofibromatosis Association (NFA)

Our goal is to help improve the lives of those affected by Neurofibromatosis, a genetic disease for which there is no cure. The condition can present many, often horrific complications including internal tumors, facial tumors, curvature of the spine, deafness, blindness and learning difficulties. There are over 25,000 children and adults with the condition and we help them by providing first class information, support and advice; facilitating & promoting innovative research, and through advocacy work. We are the only UK charity dedicated to helping those with Neurofibromatosis.

Web: www.nfauk.org
Call: 0208 439 1234
Email: alison@nfauk.org

Neurofibromatosis Association (NFA)

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